7° Forum Internazionale della Cavernoma Alliance UK

Versione stampabileSend by emailPDF version

Londra (UK)  16 Giugno 2013
Gallery

Cavernoma Alliiance UK held its Seventh International Forum at the Grange Holborn Hotel on the 16 June 2013 with a record attendance of 147 participants, many affected by cavernomas of the brain and spine.

CA UK had organised a star-studded line-up of speakers.
Professor Rustam Al-Shahi Salman spoke about the importance of establishing a cavernoma clinical trial.
Professor Dr Helmut Bertalanffy gave an exceptional talk entitled "Management of Cavernous Malformations of the Brain and Spinal Cord: Well-established and New Concepts".

After coffee, the CA UK Forum broke into six discussion groups, this year dealing with the psychological impact of a cavernoma, living with a cavernoma, living with someone with a cavernoma, cavernoma and surgery, incidental and asymptomatic cavernoma and spinal cavernoma.  The latter discussion group was well attended in a year dubbed as the year of the spinal cavernoma.  With Professor Bertalanffy's talk including his experience of spinal cavernoma and a workshop on the subject, members with spinal cavernoma were well-informed.

In the afternoon a talk by Dr Gordon Plant, a neurologist with a specialism in neuro-ophthamology, Dr Plant gave a fascinating insight into some of the symptoms such as (double vision), that is a predominant feature of various cavernoma.

After a brief break CA UK was lucky enough to have Sacha Bonsor, author of Dipped into Oblivion, her documented journey of a brainstem cavernoma removal by Dr Robert Spetzler in Arizona join us in a discussion led by Emily Fletcher, a member and now a trustee of the Alliance.

An Annual General Meeting followed which duly elected Professor David C S White CBE as chair of the trustee board.

Additional Links:

Italiano
Tags: 
eventi